We are a group of families who came together to navigate the overwhelming complexities of congenital heart disease (CHD). Seeking guidance and connection, we turned to a national nonprofit for support. While their resources were invaluable, we soon learned they would be stepping away from individual state chapters. 

Knowing that we wanted to continue supporting Pennsylvania families and also that no family should have to face this journey alone, we took action. Inspired by our own experiences and the shared struggles of families like ours, we founded Keystone Hearts of Pennsylvania (KHOP) to ensure that every CHD family in our state has access to the support, education, and community they need.

This is Our Story

Today, KHOP stands as a beacon of hope, an essential resource, and a compassionate community for families navigating CHD. We are committed to empowering individuals, parents, and caregivers with the tools, knowledge, and emotional support they need to face each step of the journey confidently.

At KHOP, you are never alone. We are here to walk beside you, offering compassion, knowledge, and care every step of the way.

Our Unique Approach

At KHOP, we focus on what families need most—community, connection, and hands-on support. While research and advocacy are important, we leave that work to the experts. Our mission is simple: to provide hope, comfort, and a strong support system for families navigating congenital heart disease.

What makes us different? Every member of our team has been personally impacted by CHD in some way—we get it. We understand the fears, the hospital stays, the tough decisions, and the need for a compassionate community that truly understands. That’s why we’re here—to stand beside families, offer guidance, and create a network of support so no one has to face this journey alone.

Our impact

60%

of children with a heart condition have special healthcare needs.

25%

of children born with CHD will require heart surgery or other interventions within their first year to survive.

100%

of families impacted by CHD can benefit from a community of care and support.

This is why we’re here — to ensure that no family faces the journey of congenital heart disease alone. Together, we create a network of care, hope, and strength for those who need it most.

Our Leadership

  • Joseph Baranowski

    PRESIDENT

  • Angela Bertugli Spece

    VICE PRESIDENT

  • Lauren Grzmala

    TREASURER

  • Pamela Baranowski

    SECRETARY

Support Our Work

Keystone Hearts of PA relies on the generosity of our community to keep our programs running. Whether you donate, volunteer, or spread the word, you are helping families feel less alone in their CHD journey.

Ways to support KHOP:
💙 Donate – Help fund care packages, medical navigation services, and emotional support programs.
💙 Volunteer – Get involved by assembling care packages, hosting events, or providing peer support.
💙 Advocate – Raise awareness and share our mission with others.

Every contribution makes a difference. Join us in bringing hope and healing to CHD families across Pennsylvania.

Compassionate Care for Every Step of the CHD Journey

At KHOP, our mission is to support families navigating the complexities of congenital heart disease. We are dedicated to providing essential resources, emotional support, and a compassionate community to ensure that no one faces this journey alone. Through care packages, medical navigation, educational resources, and community events, we empower families with the knowledge, tools, and connections they need to thrive. With firsthand experience of the challenges CHD brings, our team is committed to walking alongside every family, offering hope, guidance, and unwavering support.

Stay connected with KHOP and be part of our community!

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